NIHR Funded Clinical Research Masters
University of Brighton, 2017 -2019
Research Project Title: Towards a more balanced narrative of living with dementia
The aim of my research study is to explore stories from people living with dementia. If a more balanced picture of dementia is readily available, newly diagnosed individuals and the people in their lives will be offered an alternative vision of living with the condition. Receiving a diagnosis in an environment of hope will support a more positive start, giving a stronger foundation for living and coping with dementia.
I presented my findings at the 2019 Royal College of Occupational Therapists Conference, sharing the stage with Dory, one of the contributors who lives with dementia.
Conferences
Presenting at the 2018 UK Dementia Congress in Conversation about Dementia Diaries about my role as a volunteer transcriber for the project.
D-Mob, Brighton based peer support group, held a workshop at The Dementia Congress in Brighton in November 2018: “D-Mob: Finding our feet, finding our voice and helping you find yours. Sharing the journey of forming a new DEEP group and creating a local information pack for people living with dementia attending Congress in our home town of Brighton & Hove”. It’s a pleasure to watch people’s confidence growing as they share experiences and support each other.
I presented with Dementia Diaries at the Dementia Action Alliance Technology Event at the Royal College of Occupational Therapists (RCOT). I was lucky enough to present my perspective as a volunteer transcriber for the Dementia Diaries Project.